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My
New Year's Message to the BAM Community
There
are some great surprises in store that are very exciting, and some
true landmark events and measures of progress that I will be absolutely
thrilled to announce to you all! We've come such a long way since
I started one small page back in 1997--back when there was absolutely
nothing out there for those who suffered from this debilitating
neurological disease, back there when those who suffered were isolated
and spread out around the globe, each thinking they were truly alone.
But there is so much more work to be done, so many more people to
reach around the world who are scared, confused, and feeling like
nobody else in the world understands how they suffer or how they
feel. Many people still have no diagnosis, no neurologist, no treatment,
no support network, no confidants, nobody who understands. Many
are left without jobs, afraid they cannot care for their children
or drive, left without income or insurance.
As horrible as this disease can be, particularly before it is diagnosed
and treated and the symptoms at least partly alleviated, only those
who know it first-hand or who are close to those who live with it
everyday can know how painful it is to also live with the uncertainty
about tomorrow, the paralyzing fear, and the bottomless feeling
of being isolated from the rest of humanity.It can take incredible
strength to make it through the months or years it takes until it
finally starts to "get better." The physical and emotional
drain is enormous, and sometimes it takes every ounce of courage
and hope one can muster to get out of bed in the morning. But while
those who fight BAM may feel that they are losing the battle, their
courage and determination to fight will see them through.
Giving up is not the answer. Sticking with it when you feel you
can't go on is. There are answers, there is help out there, and
there are those who will help you find them both. And when you find
them, you will realize you're forever changed. You'll never see
life in quite the same way again.
Yes, there is life after Basilar Artery Migraine. "Bammers"
can lead full, productive, and happy lives. They can drive, raise
families, work, and safely do most things that "normal"
people can do. There are some things they should probably be aware
of in taking care of themselves. But then, isn't that true in some
fashion for everybody?
Bammers are lucky, too. They are members of a unique worldwide community.
They have an instant bond with people they just meet in a forum,
and that bond means more than words can ever express. It can take
them from feeling totally alone and isolated to having a friend
and confidante for life in an instant. Bammers share their lives
with each other. They seem to bypass the meaningless and go straight
to what matters in life. They are known to give selflessly of their
time and attention to people they've never met in person and probably
never will. They things in life that other people may never think
about: a day without pain, sunshine, being able to drink a cup of
coffee or eat a favorite food, sleeping through the night, being
able to drive, being able to take care of a child, being able to
travel away from home.
To all the Bammers out there, always remember these three things:
(1) you are not alone, (2) there is hope, and (3) we're here for
you.
My personal best wishes for a healthy and happy 2004 to you all,
and to your families and loved ones as well,
Karyn
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This page last updated December 6, 2003.
Copyright 1997-2003 Karyn S. Huntting
and Solutions 2000.
All rights reserved. Click Here
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